FAQ - User Communication

No.

The blogs are only visible within the site to other members. They will not be available on the world wide web and search engines.

Yes.

This helps start conversations regarding your diagnosis and/or your health care experiences due to your condition. You can respond to their comments under the blog or message them directly.

In a play on words, a Reaction (not like an allergic reaction) are your personal health care experiences or review of your course of treatment due to your condition. This can be related to a doctor you have seen, a hospital you have visited or even your experience with a insurance company. It is a way to share your Reaction(response) to the care you have received to date with the world so that other patients/caregivers can be more informed during the different stages of their care plan. Simply put, Reaction responses are meant to inform other patients/ caregivers in a precise manner where blogs contain more detailed commentary.

Select "My Reactions" from the menu once you log in, this will bring you to your management screen. Under "My Reactions" you can post new Reactions and view your current ones.

You must enter the subject area from the dropdown. You will then enter the title, location, reaction type (good/bad/neutral) and the Reaction text. All fields are required to post a Reaction.

Yes. Reactions are the one aspect of PatientReaction that is viewable to the public as well as internally. Reactions are the public voice for the members to discuss their treatment experiences so that other patient’s, caregivers will gain important knowledge regarding all aspects of their care no matter what stage of the treatment plan they are in. Posting your reaction (response) is what creates the dialog for other people to join the platform and encourages them to share their entire treatment experience.

Reactions can be deleted but cannot be edited.

Feel free to discuss your thoughts, current mood, and share video links to the community. You can also restrict a post to just your timeline for your friends/followers.

We will have this option in the future when the mobile app launches. While the site is in Beta some features of the User Post form will be inactive.

Yes. Similar to most modern social media platforms, you can like and comment on other members posts.

You can delete your posts from your timeline. Once deleted these posts cannot be recovered. Future revisions will allow for posts to be made public if desired.

Yes. One on one chats are available by sending a message to another member from the button on their profile. Once started you can access the conversation from your inbox or quick chat window.

While in Beta the group chat feature will not be available. This will be added into a future revision before the mobile app is released.

You can report the message and then block them from future contact at any time.

Yes, if the message was previously sent they will still have a copy on their end.

Yes, previous messages, comments and other interactions may still be visible.